Monday Check up...

I knew since last week that come Monday May 2nd we already had two doctors appointments. It was for me the beginning of everything. But I had no idea how heavy it was going to really be.
On Monday morning at 10:00am she had her Pulmonary doctor appointment. She was given two breathing tests and the doctor told us that in order for him to give her the go for Wednesday he needed a week to perform all test necessary. We looked at him not being able to give him that permission as Destinee's orthopedic is the one in charge of everything when it comes to her surgery. We did tell him that we agreed with him in performing all test on her. I informed him that the best he could do was to communicate with Dr. Phillips that he will be able to get better answers from him. The pulmonary doctor called Dr. Phillips and he had said that no way, no how, the procedure date could not be changed. The pulmonary doctor told us that he will do the most important test on that day and that we will have results the following day. He set up a cardiology appointment for an echocardiogram at 4pm and the sleep test at 7pm. So our two same day appointment turned in to an all day and night thing.

This was at her cardiology appointment and practically what she was getting done the entire day.

Getting her Echocardiogram

The only time of the day in where she was relaxed until her sleep test time came.

The day was really hectic with going up and down, going home to get a bag ready for her and my husband and finally having lunch to then go back to the hospital. Time passed by and soon enough 7:00pm was on top of us. I have to say that despite everything she's going through we've come across a lot of nice and sweet people. We were taken to the are where the sleep test was going to be performed. It's so happened to be the same are in where I gave birth to them and they were staying in the NICU. I got to show them where mom stayed after they were born and it really got me very emotional. After they were born I stayed in Florida for another 10 months before moving to Ohio so the thought of being back in that very same place never crossed my mind but there we were. We met the nurse in charge of performing the test, he was very sweet, caring and friendly. He talked to her and explained everything to her. He also when quickly and got Destinee a DVD movie to watch, Princess movie, her favorite. I packed her goodies for her to play with along with snacks and drinks and before I left I changed her into her Pjs and while it broke my heart leaving her I knew she was going to sleep soon enough being that she had such a rough and long day. 

Getting set up

Needless to say she was not a happy camper but I was told by my husband that by 10:00pm and some she had finally fallen asleep. They were woken up by 5:00am and soon after they were back home. At that time of the morning I had to give her a bath to remove all the sticky glue like stuff she had all over her hair. And she finally fell back asleep again.

Until the next one...

-Jessica


UPDATE: All test came back good. The sleep test was better than expected.